The first was when he got an ear infection in Idaho while on vacation. He started exhibiting the tell-tale signs of restless sleeping on Friday afternoon, and by Saturday night he only slept if he was attached to me and even then, he was in obvious pain. On Sunday morning, we took him to Urgent Care so we could get the ear infection taken care of. It took all of two seconds to confirm that yes, both ears were infected, but then the doctor said "I'm going to test him for the flu too, because we've had a lot of bad flu cases here lately." We were glad he wanted to rule out the possibility, but Brock and I were pretty confident that the test would come back negative. Other than a runny nose (which Flint had had for several weeks) the only thing that seemed wrong all had to do with his ear infections. Ten minutes later though, the doctor told us that Flint did indeed have the flu and we needed to watch him carefully, but since we caught it early he should be fine. I'm SO grateful for the ear infections, because I don't think we would have figured out he had the flu until much later, when his symptoms would have been much more severe and harder to treat. The ear infections exposed the flu, and I'm so grateful for that!
More recently, we had a REAL scare though, that left us in prayers of gratitude that Flint "only" had an ear infection. At Flint's 4-month check-up, we were thrilled to see that his height and weight both sky-rocketed on the growth chart. By sky-rocket, I mean that instead of being way, WAY below the growth chart, his growth curve jumped up to where he is now ALMOST on the growth chart. YAY FLINT! We were very excited about this, but also very worried when we saw that his head size also jumped - from the 50th percentile to the 90th. That jump is definitely not supposed to happen, and with Flint's hydrocephalus, we were all somewhat concerned. Luckily, Flint had a follow-up appointment already scheduled with the neurosurgeon a few days later. Dr. Errington felt that Flint was probably just playing catch-up like the rest of his body, and that everything was fine. Due to Flint's increased head size in the womb, he has a HUGE soft spot, and a tell-tale sign that the shunt is draining well, is the fact that his soft spot is so exposed. However, Dr. Errington wanted a better look inside, just to be safe, so he ordered a CT scan to double check that the shunt was functioning properly.
Don't those pictures just break your heart and make you so happy, all at the same time? Sweet baby just laid on the table while they got him all situated. He got a little frantic at first, but they let me stay right by him and touch him, so he just kept staring at me the whole time. I don't know if he was looking at me for reassurance, or to reassure me! Either way, it only lasted a few seconds and we were out of there.
The next day Dr. Errington called with the results. The first thing he said was "His ventricles are huge." My heart DROPPED! Our brains have 4 ventricles and that's where all the extra fluid hangs out that makes Flint have hydrocephalus. However, now that he's had the shunt in for 4 months, those ventricles shouldn't be huge, because the shunt should have drained out all the extra fluid. Dr. Errington went on to explain that Flint's ventricles have always been huge, so he's really more in a state of homeostasis right now. He's not under pressure and it isn't negatively impacting him, but it could be a problem down the road. Some shunts are programmable, but the pediatric neurosurgeons in Dallas don't use those kinds because they are also more susceptible to malfunctioning. If Flint had a programmable shunt, the doctor could just easily adjust the rate at which things drain. Since that is not an option with Flint's shunt, the only answer is to go back into surgery and place a different shunt. However, at this point Dr. Errington is not sure that we will have to do that. If Flint was showing any signs of duress, we would have to operate immediately. But at this point, Flint is reaching all his milestones, he's eating and sleeping well, and is a happy baby. Those are all signs that his brain is doing just fine. Dr. Errington thinks that as Flint's brain continues to grow (like any baby's grows at this point) it will change the pressure inside his brain and things SHOULD start draining better soon. At this point, the plan is to continue to watch his head size closely, pray hard, and wait to see if things improve on their own before we subject Flint to another surgery. Dr. Errington ended our conversation by encouraging us to get a 2nd opinion from Dr. Weprin, the doctor in Dallas who placed the shunt, and then told us to watch for signs that Flint is NOT doing well. If he stops sleeping and eating well, becomes extremely fussy, his soft-spot bulges, or he becomes limp, then we have cause to be concerned. In fact, if his soft-spot bulges or he goes limp, we basically head right to the ER and prepare for surgery immediately. Dr. Errington told me that with Flint, the signs would probably happen gradually, so I needed to keep an eye on Flint and if I noticed anything different in his behavior I should contact the doctor right away.
I hung up the phone nervous about Flint's shunt but hopeful that with time, the issue would just resolve itself. The day progressed normally and all was well with Flint and the rest of the kids. Flint went to bed that night without any trouble, but a couple of hours later, he woke up screaming. Flint had been sleeping through the night for a solid 12 hours, so when he woke up, I was quite nervous. I tried to nurse him, but he wasn't interested and still had a hard time sleeping. We spent the rest of the night trying to keep him comfortable enough to sleep or nurse, but neither thing was happening very successfully. By the time morning came, he was so upset that the only way I could keep him calm was by holding him and letting him suck on his binky. Brock and I were terrified! He was starting to show the signs of a shunt problem by not sleeping or eating, and he was definitely inconsolable. Brock and I just knew that he was going to have to have another surgery and we were so heartbroken and worried. Dr. Errington's office doesn't open until 9, so I sat on the couch, holding Flint while he and I both cried. At about 8:30 I had the thought that I should call his pediatrician and take him in there, just to rule out any other sickness being the cause of his bad night. They got us right in and we headed to Amarillo, terrified that the day would end with another brain surgery.
Imagine my relief then, when the doctor took one look at Flint's ears and told me he had another double ear infection! WOO-HOO!! YAY for ear infections! Seriously, I have never been so grateful for an ear infection in my LIFE! We called Dr. Errington to fill him in on everything and he said that as long as we saw improvements in Flint's behavior over the next couple of days, we should assume he's fine and that everything that happened was because of the ear infection. We were so blessed that the medicine and tylenol kicked in quickly and Flint was a happy, happy boy again by the next afternoon. THANK GOODNESS!
I remember after Flint's surgery, when we first learned how to take care of him and his shunt, the doctors warned us that there would be a lot of false alarms. The early signs of a shunt malfunction are the same as when any baby gets sick with anything, or even when a baby starts teething! They warned us then that this would be the case, so I guess we had our first experience with it. I think that if it had happened at any other time, I wouldn't have worried so much about it being a shunt problem. But since I had just had an extensive conversation with the doctor about those warning signs a few hours before he started manifesting some of those signs, I automatically assumed it was because of the shunt. Oh well. As the doctors all told us, it's better to be safe than sorry! I just really hope that Flint is a pretty healthy boy, because every time he gets sick, I'm going to go into panic mode, worrying about his shunt. As I've said before, one of Flint's main purposes in life is to keep me in a constant state of prayer. He's certainly living up to that task!



























